My life has been a roller-coaster and no mistake. Its all been downhill for too long though, time to do something about that.
"Say hello to my little friend..."
As a child I was bullied by my peers and ignored by my parents, my father being the worst of the lot until my mother finally managed to get us all away from him. I spent my childhood in a tiny rural English village that is frequented by royalty being the home of international Polo in the UK. Among a group of privileged youngsters I got to goal-judge and score for the rich and powerful as they played, and hung around the stables and the functions. Seemed pretty normal to me, some kids had a paper round to make some pocket money, and Royalty has always done as it pleases... So, despite wanting none of that world for myself I was already outside the working-class background I come from, and as a result didnt have many friends either. So I hid in the library and the computer room, or roamed the local countryside the rest of the time, and nobody paid attention to my dreams, not even me.
I was told not to dream, punished for not learning quickly enough and told I was useless so by the time my exams came around I just didnt bother revising, and left school to be a groundskeeper at a local hospital before I'd even passed them all with flying colours. Computers absorbed most of my free time and I didnt mind grubbing in the dirt for my keep and chasing student nurses around the accommodation.
Recreational drugs, alcohol, motorbikes, heavy metal and a series of jobs ranging from horticulture to heavy industry followed that, until I decided to see the world and find myself, and trampled back and forth all over Europe for a few months until the Wall fell. I was in Cologne, and I really wanted a piece, but I couldnt even get near it so I went back home to Blighty and wound up homeless, where I met the kids mum... That story is an epic in itself, but skipping over it just leads me to creating BLAIR, AIME and the other robots that I dreamed about as a child, and our government kindly destroyed and are preventing me from developing even today.
For what reason I cannot discern, but there must be deeper reasoning than just using me as free care for Bea because they dont get a penny from what I do.
This is the purpose of Obsidian, to hack a decent life for me an Bea out of MorningStar without putting her in care or me dying homeless and penniless, too old to care for Bea or work, and without a pension or savings - which is what the f*ing Tories have in store for me when I'm done.
I'm not down with that, I think I've got a lot more to give the planet before I'm gone for starters, and there is a sense of injustice to it even if I didnt. There's a lot more to a human being than being human, and that's all I've ever tried to do. Our so-called leaders should learn this.
If you have a suggestion or a criticism, this is the place for it. Ironically, I am the one thing I can claim very little expertise in. ;-)
Hench attempted a coup, and failed - for which he has paid the ultimate price.
At the beginning of this year Hench's reputation was in tatters. He'd failed to provide any service whatsoever and annoyed me to the point of threatening litigation, so in desperation I employed two near neighbours using funding from the government as carers for Bea. Yeah, I know, and it didnt work out so well...
Later Hench discovered probably the worst care agency in the country and sent them in. Bea and I befriended one of the carers, a girl half my age pregnant with twins who complained about her boss and the conditions her job imposed on her elsewhere. Probably a mistake, but I had words with her manager about that, and offered my services to assist the old bag with her micromanaged and inefficient scheduling that needed dragging into the 20th Century first, and then updating with a mobile solution. That didnt work out so well either, she threw the contract and lost yet another mutual friend of me and Bea. These people are as rare as unicorns...
Back to today, and I still dont have carers after months of Hench telling me it was impossible to find someone despite advertising. Now, granted it is extremely hard to get anyone to do anything these days without flashing significant cash at them, but now I find out he's been taking the piss.
I began to get frustrated and left a few less than polite messages asking where my services were and managed to upset him, whereupon I got called delusional, and dangerous, and some kind of sex pest regarding the carers. It got real nasty but thats invariably water off a ducks back to me. However it transpires thats what he's been telling the carers, and naturally being short-staffed they just wont take the contract.
In these circumstances, two carers are required to attend for their own safety. And they dont have spare carers, so...
Well, I hit the roof.
Next thing I know I'm again denied access to our legal framework as DoLs back out - Thanks for that BTW, that was really helpful - and I'm right back to Square One with Hench.
Oh, really. Well you understood wrong.
And no it wont, and I'm perfectly aware who the legal advocate is, so they can take a hike.
And you can look all you like, but unless you can provide decent one-to-one care that doesnt involve me doing or supervising it on benefits - or me being thrown onto the streets in debt, branded a failure and a pervert, then you arent going to like my views very much.
And I dont recall asking you to do any of that in the first place, you pompous and officious little rodent.
So I called Igor, and enquired whether he had authorised or even condoned Hench's behaviour and intimated that if he did, I'd sue his stupid ass for it personally instead of Hench's. No, wait, as well as.
I was rather indignant XD
Igor has learned to respect me, and only had Hench deal with me because he isnt skilled enough. Thats why he chose Hench, who he sees as an expert in care and a part-time rock star, thinking I'd respect him automatically. Well Igor has been wrong about a few other things lately, and agreed that was perhaps a poor choice.
Hench is gone then, and wont interact further. Hooray!
I also reminded Igor about my lack of representation at said meeting, and reminded him I was on a waiting list for an advocacy service, and he took it upon himself to prioritise that as well. Next thing I know, I have an assessment for an advocate and the meeting has been moved to the 5th Nov...
The day before Bea's birthday as it happens. It is also an auspicious day in the UK. From Wikipedia...
Guy Fawkes Night, Bonfire Night, or sometimes Firework Night.
An effigy of Fawkes, burnt on 5 November 2010 at Billericay
DoLs pulled out, stating that as they were in fact not asked to authorise Bea's care at the time of the incident they did not have a case to put to the Court of Protection - and therefore would not be assisting me.
Thats the final straw, I'm not going to be slandered and fucked over by those monsters for a measly £14k, the council can keep it. The social's Best Interests meeting next week will be focused on Bea getting one-to-one care and me getting passage out of this fuckhole debt free without me terminating anyone.
I'd rather go work for Ada than put up with this. No brainer. For my daughter I'll put up with a lot, but hands and knees scraping up body fluids again, nah, not to be laughed at, and not to be slandered as delusional, dangerous, or some kind of pervert even for money.
Bea doesnt have a problem with it, she hates this house, is fed up with the builders and the unfinished park and from the looks of it, me as well. I'm sick of her walking around naked, and this latest BS with the contraceptives that DoLs have also neatly sidestepped just leaves me hanging.
The carers also predictably didnt want to touch the contract and also quit.
So do I then.
They can keep their web of lies and struggle for control, Imma just walk out of here. Before they do drive me mad, or I do hurt myself or someone else.
Poor Hench. He really hasnt got a leg to stand on. Its Garthoks all the way down...
I've begun sharing this recent document chain with the agencies that are involved, but not with Hench. He's on his own, and he's going to find out what it feels like when some arrogant tosser with a big stick annexes your resources and support.
Those weapons turned out to be very useful when he dropped them and ran like a coward back in his Ivory Tower after attempting to wield them against me.
He's really professional too. "...delusional little man, nothing; just a carer and nothing more... weird... dangerous..."
I've been called far worse, and you can bet he has.
And, as I have just had to deal with Bea's period that I knew was going to hit me this weekend, I've just reported it as an offence and cited Hench as the abuser. I'll do it again tomorrow too.
He's going to wish he'd never heard of me by the time I am done.
It doesnt matter if your entire government is corrupt, and your PM even defies the Supreme Court in a vain effort to wrest control from his people. They still cant get away with it unless you let them.
And I'm not.
Brexit is a sham, but not for the reasons you'd think. Boris wants to use the opportunity of regaining the UK's lawmaking ability to consolidate Central Government's power over Parliament, who debate the laws ratified by the Supreme Court. He'd rather control rested in his fat and grubby hands. And if he has his way, we the people can say goodbye to the last shreds we have of our rights that are currently still protected by the
Which I am denied access to by our legal framework - which I am also denied access to by the changes made by this administration. I cannot get Legal Aid to take Local Authority to court for fraud and rights abuses against myself and my daughter, and I have had to fight tooth and nail just to get recognition from the various agencies within it that I am literally enslaved by these additions to our already broken system.
I've been spied on, lied to, defrauded of thousands of pounds and my daughter has been coersively institutionalised and injured by neglect more than once to hide these transgressions until they can be further marginalised in the wake of the new laws created by regaining control in the wake of Brexit.
Now they want me to defraud the benefits agency, claiming I am disabled by my daughters disabilities for the rest of my life because I am her carer - when they could in fact provide that care themselves. It IS law after all.
The whole case hinges on whether Bea has capacity to make her own decisions, a duty that has been accorded to me as a carer and advocate, however as I am not volunteering for this duty willingly that advocacy isnt recognised.
Enter Deprivation of Liberty Safeguarding Team, a part of the Court of Protection.
This agency was engaged by Social Services in an attempt to get authorisation to keep Bea at a care home until recently - they gave consent for her to be detained and her freedoms restricted, and for decisions regarding medication and treatment to be made for her. They couldnt overrule me legally however, and were more than horrified to learn that they had trampled my rights by accident - they didnt know I existed, because Social Services lied to them. And now, having learned of the full story, are in the process of putting an application in to the Court of Protection to discuss the details of it in front of a Judge.
One of the things authorised by DoLs is medication. Bea's been placed on a contraceptive pill, which helps with her demeanour as well as prevents bleeding. She doesnt need contraception, and that was only done to make it easier for the carers to manage her personal care. She's about to run out of these pills and as a male I am not entitled to procure them for her. They literally wont give me them because I'm a bloke, and the care homes have been securing them for her during her Respite breaks with DoLs permission.
It was the only legal way Social Services could force me to continue caring myself - and now I have annexed DoLs that reign of terror is over. As soon as the course finishes I'll have to deal with her bleeding again, and I've already managed to establish this is a violation of human rights with the help of the police.
They have given me advocacy, which means that if I were to be forced to deal with this again I'd have the right to report each day's care schedule as an assault and cite the social worker as the abuser by proxy. Nasty, dirty, shitty interdepartmental war between two halves of our governments enforcement arm...
I called them and reminded them about the bomb ticking in Bea's knickers
And all hell broke loose.
So on Monday I now have a care agency visiting to negotiate Bea's care, and I can rest knowing that our legal system...
I dont blame you, but FFS, right? This cant go on.
Please, do me and Bea a favour and email The Sun or one of the UK's other national papers with your take on it if this annoys you. Doesnt matter where in the world you are, and even if its just a few lines, every word counts.
I dont usually lose my temper with him, despite our differences of opinion, but after the tabloid I chose to bust this story open declined to even contact me [Hello, The Sun. Really helpful of you, thanks] I was already a little truculent.
I'd left him a message, and feeling particularly pensive I bought a bottle of rum to calm my nerves and completely forgot all about that. I only had a glass, it wasnt like I was drunk when he called me back to update me on his progress. He told me proudly of having put out an advert, which had 64 responses to it, all negative.
That pissed me off though. Nobody answers an advert to say they arent interested in the contract on offer. They ignore it. Unless of course they have good reason not to, in which case they will complain. Well if they had complained about me or Bea in some way as part of their refusal Hench would have gleefully heaped it upon me, so obviously his advert did nothing but rile the care sector who are underfunded, understaffed and overworked and already refusing to assist Social Services at a national level. I'm requesting that the advert and the responses to it be made available; as her care manager I should have been copied in as a matter of course.
I also remonstrated with him about the neglect leading to Bea being injured and then treated more than once in care, and he denied all knowledge - which explains why DoLs are so ambivalent. They have been lied to, and have two conflicting stories, one from a Social Services manager, and one from an irate advocate with an unbelievable story that probably counters the manager's diametrically. What the DoLs Practitioner SHOULD do in this situation is apply to the Court of Protection for a ruling based on an assessment of the situation, but thats not possible until Keri has a recognised advocate in the form of a deputy, and they wont recognise me formally as in authority.
I may have called Hench fucking useless - and to be fair he had a right to defend himself - but he blamed the carers that his organisation are responsible for, so they all got called fucking useless too. Then he tried his usual tack of blaming the economy, and the government got called fucking useless as well. I think he knew he wasnt on a winning streak, because he then switched to email.
For the non-musical [ Hench is in fact an accomplished musician ] I should explain.
6-8 refers to a time signature in musical notation. Most modern music is based on 4-4, a system where the timing is divisible by two's which makes it easy to dance to. 3-4 is pretty specialised and is heard mostly in Waltzes, and 6-8 is rarer still and most often found in Jazz... And nobody can dance to that nonsense lol.
I think he liked the cussing better, because presently this appeared.
Which put a stop to the emails until this morning, when I could call Disability Living Allowance who are a pain in the arse to get hold of.
Yes folks, thats what an apology for being fucking useless looks like. He hasnt done a single thing that me, him, his manager and the housing agents agreed on so they'd get their money. I'm keeping my end of that bargain, and the agents backed up so rapidly there was a disturbance in local space-time.
That explains then, why the District Council kept my tenancy open for 5 weeks after I signed the new lease and continued to raid my bank account for it, and you guys think I'm a Time Traveller. XD
However, speaking to DLA when I finally got through was most revealing.
Which all basically boils down to
a) Bea is entitled to full Housing Benefit just through having the High Rate Care component, however she is also entitled to High Rate Mobility by the DoLs assessment of her behaviour and capacity that requires her liberty to be monitored.
b) I am also entitled to my own DLA award because...
OK, I've rewritten it taking @salec 's kind comments into consideration.
I'm sorry if this sounds like I'm stomping around, but I have to get the message across somehow and drawing on the awesome things you guys have said about and to me is really all I have.
And now I dont fit through a normal door anymore. ;-p
My name is Jez Boxall, although outside of the UK I’m better known as Morning.Star.
a carer, my eldest daughter Keri [Bea to her friends] lives with me
because she has severe learning difficulties, but still wishes to
live in the community rather than be literally locked up in a care
home and largely ignored – worse, have all her property stolen
repeatedly, and be neglected to the point of injury. That only
happened because Social Services repeatedly kept attacking me, her
carer and advocate, to try and institutionalise her anyway. I’ve
been unfairly accused of everything from narcotics and alcohol to
sexual abuse, and the charges dropped when Social Services couldnt
provide evidence, overruled, sanctioned, thrown out of my home,
defrauded by local authority, my reputation smeared and my work
destroyed and finally been enslaved by a corrupt authority as a carer
on benefits, unable to work or realise my potential, and unable to
obtain justice for me and Bea.
then I have been kept in poverty to prevent me getting legal
assistance, on Income Support, and forced to do all the care work
myself, unpaid, and against regulation – as an adult male I’m not
really allowed to help with female personal care, but my daughter
doesnt mind as I’m her dad. Its me who has issues with her walking
around naked, and with her periods, and bathing, and, and…
should have a female carer come in daily to assist her, but Social
Services are incapable of supplying one, and insist she’d be better
off in a home. Under these conditions they may even be right, but
Social Services created these conditions and I’m her dad so I wont
betray the trust she has in me. Besides which, as soon as they have
their hands on her I’ll be made obsolete and thrown onto the
streets in debt, branded a failure, and unable to speak for her when
she is again abused.
However, I am also better known as Morning.Star to the
rest of the world. I have world records to my name ,
awards and accolades, and even things named after me .
I’m an influential member of an international organisation of
makers called Hackaday , where I release my work
and research into robotics and artificial intelligence, and computer
engineering , and have fun taking things apart
and making crazy new things out of the pieces. I also post my artwork
, music, and musings on the world, and talk with
some of the worlds most intelligent people - my friends, who I might
add are disgusted with what I’ve had to endure in this country. But
they are unable to help, merely watch in frustration. I’m known in
34 countries, not including the UK where I am just marginalised.
been compared to Tesla, to Escher, to Turing, and to DaVinci in the
last two years, also to Superman and Batman, Doctor Who, James Bond,
and a few lesser known but equally legendary figures from modern
culture too. And lately, my story has been described as Dickensian,
which I’m not so happy about.
a multiple genius working across 7 distinct fields, and some of the
things I have done are truly mindblowing. I built a tiny version of a
popular geek toy that turned out to be the worlds smallest, so I made
one half the size and have plans to build one half that size when I
have the funds. The techniques I created and adapted for this piece
have now been adopted into the maker community and restarted a trend
of hand-built ‘Deadbugged’ electronics design, this time in
miniature. And after Nintendo realised what a great idea making
robots out of cardboard was, they took that and created Labo, and
didnt even credit me (or Hackaday) for it, 
despite the project giving me my name and reputation....
I've written a Press Statement, which I will be sending to our national papers tomorrow.
Coincidentally, I'm also due in Magistrates Court over non-payment of my Council Tax. Seeing as I have no legal representation, and the Council owe me 100 times that debt, I simply refused to pay until I was given a hearing where a magistrate will enforce it.
I'm not bothered, I'll pay the Clerk of the Court the money I owe, and the court fees, before I go into the hearing where I will present the magistrate with my Press Statement.
That should give me Jurisprudence I can use to push my case further legally as well as publicly.
And I’m exposing corruption in our social care systems and my local
authority that runs all the way to the top. My story begins 19 years
ago with my then partner, and my kids’ mother, attempting to kill
me on 3 separate occasions during Bipolar episodes, which she
suffered increasing regularly over our years together. She was never
prosecuted as a result, and in fact was given counselling and therapy
and allowed to stalk me and the kids for years while we hid in fear.
Finally after 6 years of that and because Bea is profoundly disabled, Social Services intervened and gave me
Respite, a service that they denied even existed, as they
deliberately neglected me hoping I’d fail. I didnt of course, and
managed another 8 years exemplary care during which time I built my
first robots, learned to paint and play numerous instruments, and
researched mathematics and physics. When I’d all but completed
AIME, a humanoid biped, and AIMOS, its operating system
West Sussex County Council
Spent 5 years attempting to institutionalise my daughter
repeatedly using its social care arm to execute a planned
intervention aimed at separating a vulnerable person from her
advocate and carer because
Arun District Council
Made a mistake 20 years ago with her carer benefits leading to a
£14,000 rent overpayment that they do not wish to reimburse. That's
because they then sent in Social Services five years ago with an
unsuccessful smear campaign - Accusations of drugs, alcohol,
physical, mental and sexual abuse, criminal mental instability,
neglect and fraud from a blind social worker from
Social Services Adult Disability Team
Complete with guide dog and handler, who came to my home and told
me that despite having zero ability to communicate with Bea, she'd
established that she wanted to be institutionalised, overruling me as
her advocate and cutting me off from all the resources needed to care
for her. She was dragged kicking and screaming with all her
belongings to a series of
Where she was neglected to the point where all her clothes were
lost/stolen and replaced with a jumble-sale. Including by now 6 x £25
of bra's carefully chosen to fit and support her, without underwires.
That resulted in her being given an underwired one several sizes too
small that cut her, and then broke so the underwire pierced her
breast and caused an infection severe enough to warrant medical
attention. This episode was covered up by Social Services and I only
found out because
Called on me at our home to treat her, when she was in fact being
held illegally in care - hence the medical services being called to
where she was officially resident. I cant really find fault with the
NHS / Mental Healh services, they have been supportive even though
they cannot do a thing.
They cannot treat me - there is nothing wrong with me - and they
cannot counsel me for the trauma caused by all this until it is over;
I have presented myself to a psychiatrist on numerous occasions, and
each time been thrown unceremoniously back out of their offices
because I'm genuinely a multiple genius with a historic...
Hard written evidence is hard to come by, but every now and then...
Unfortunately for Social Services, this document can only be commissioned by them, and attempts to subvert my authority as advocate so that the State could continue to hold Bea in care on an open-ended arrangement under advice of a doctor and an 'independent' advocate.
Of course its unclear to the assessor why Bea is prescribed a contraceptive. It was done without my authorisation last time she was in care, and was done to prevent her becoming pregnant in the event of her having sexual contact with the male residents as well as to control PMT.
She does not have the capacity for a relationship of that nature and should instead be supervised to prevent any unsolicited attempts by others to instigate one.
It also conveniently controls the worst of the trauma her personal care causes me without having a personal carer - as an alternative to one, FFS, and its an abuse of rights to medicate someone to control their behaviour without a court order
Or to put it another way, this shit was rushed through like lightning without my knowledge, let alone any authorisation.
Like I said, on whose authorisation exactly is she deprived of her liberty?
Its there in black and white.
The first highlight is delicious.
Bea has been assessed as having no capacity to make decisions or to communicate them, which is complete hogwash for starters. She knows what she wants and has been telling them, and me, for years. That IS why I was made her advocate in the first place.
Unfortunately for DoLs, they now have to process MY request as her advocate that she has her case heard in court. She'll be present, but I'll speak for her. And for myself, as the representative the assessor deemed ineligible to speak for her. (The second highlight)
I luckily phoned the care home while the assessor was there and managed to stop this dead in its tracks by speaking to her and informing her of the illegality of her actions.
And just to rub salt in their wounds, both the DoLs team and the advocacy service now work for me against Social Services. Think about whats been done to me for the last 5 years.
Deprivation of Liberty and marginalisation - In particular the advocacy service will be interested in giving me, well, advocacy, and on a legal basis. They have no choice as their remit is to ensure that all parties are heard in any dispute. And DoLs will probably fold under the pressure too, and they are a government agency. All they have to do is refuse me access to their services and I have them bang to rights as well.
Note that the form is unsigned - it has been sent to me as the Care Manager instead of me as the Advocate, because Social Services lied to DoLs about my existence and their need for involvement.
I can sign it myself and return it to the supervisory body and request that a hearing be scheduled using it, as her care manager and official advocate, and be given legal assistance to attend it.